Self-Management Behaviors and Quality of Life of Patients with Sickle Cell Disease in Oman.
Abdullah Al-Salmi – March 2018
Many individuals in the Sultanate of Oman are affected with sickle cell disease (SCD), a hereditary chronic disease. The purpose of this quantitative descriptive cross-sectional study was to explore the SM behaviors and the quality of life (QOL) of adult patients with SCD in Oman. A convenience sample of 199 patients with SCD was recruited from eight Ministry of Health hospitals. Results indicated that the participants moderately perceived themselves as effective self-managers of their disease and perceived their QOL as poor in the physical domain, good in the psychological domain, very good in the social relationship domain and fair in the environment domain. Statistically significant positive but weak correlations were identified between age and scores in the psychological domain of WHOQOL-BREF scale (r = .183, p = .01). Participants with secondary and post-secondary levels of education perceived significantly better QOL than those of primary education level (p = .002, p = .001; respectively). Significant but weak correlations were identified between the perceived SM behaviors, and physical, psychological, and environment domains of WHOQOL-BREF scale (r = .194, p = .006; r = .363, p < .001; r = .388, p < .001; respectively). Similar correlations were also identified with the general perception of QOL and health (rs = .266, p < .001; rs = .231, p = .002; respectively).